Lived Experience Research Unit

Consumers (people who have experienced a mental disorder) are increasingly interested in participating in and managing their own health.

In 2003, Professor Kathy Griffiths established the Depression & Anxiety Consumer Research Unit at CMHR in order to promote greater consumer involvement in research content and practice by serving as a bridge between consumers and researchers. The Consumer Research Unit is staffed by academic researchers and students who are also consumers. In 2013 the ACT Health funded the establishment of the ACT Consumer and Carer Mental Health Research Unit to undertake research of benefit to ACT mental health consumer and carers and build research capacity in the ACT mental health consumer and carer community.

Many of the CMHR's research projects involve direct participation or input from people who have suffered from an anxiety or depressive disorder. One of the Centre's unique strengths is that we focus on research for consumers by consumers.

CMHR's high quality research program also addresses the priorities and needs of mental health consumers in the community, and consumer perspectives in research.

If you are a mental health consumer and are interested in taking part in CMHR's research programs, please visit the Consumer Research Register page for more information.

 

Publications

2017

  • Banfield M, Jowsey T, Parkinson A, Douglas K & Dawda P. (2017) Experiencing integration: A qualitative study of consumer and provider experiences of integrated primary health care in Australia. BMC Family Practice 18:2. Full text

2016

  • Desborough J, Mills J, Banfield M & Phillips C. (2016) Exploring the process of patient enablement in general practice nurse consultations: a grounded theory study. Journal of Advanced Nursing Early Online. Full text
  • Desborough J, Bagheri N, Banfield M, Mills J, Phillips C, & Korda R. (2016) The impact of general practice nursing care on patient satisfaction and enablement in Australia: a mixed methods study. International Journal of Nursing Studies 64:108-119. Full text
  • McRae I, Dawda P, Banfield M & Parkinson A. (2016) Can we measure integration of health care from administrative and clinical records? Australian Family Physician, 45(9): 672-75. Abstract
  • Gee A, McGarty C & Banfield M. (2016) Barriers to genuine consumer and carer participation from the perspectives of Australian systemic mental health advocates. Journal of Mental Health. 25(3): 23-37. Full text
  • Gardner K, Parkinson A, Banfield M,Sargent G, Desborough J & Kalia-Hehir K. (2016) Usability of patient experience surveys in Australian primary healthcare: A scoping review. Australian Journal of Primary Health, 22(2): 93-99. Full text
  • Banfield, M.A., Barney, L.J., Griffiths, K.M. & Christensen, H.M. (2014) Australian mental health consumers’ priorities for research: Qualitative findings from the SCOPE for Research project. Health Expectations, 17:365-375. Full text

2015

  • Banfield M, McGorm K & Sargent G. (2015) Health promotion in schools: A multi-method evaluation of an Australian School Youth Health Nurse Program. BMC Nursing, 14:21. Full text

2014

  • Desborough J, Phillips C, Banfield M, Bagheri N & Mills J. (2014) Impact of nursing care in Australian general practice on the quality of care: A pilot of the Patient Enablement and Satisfaction Survey. Collegian, 22(2): 207-14. Full text
  • Gardner K, Banfield M, McRae I, Gillespie J & Yen L. (2014) Improving coordination through information continuity: a framework for translational research. BMC Health Services Research, 14:590. Full text

2013

  • Jowsey, T., McRae, I.S., Gillespie, J.A., Banfield, M.A. & Yen, L.E. (2013) Time to care? Health of informal older carers and time spent on health related activities: an Australian survey. BMC Public Health, 13(1): 374. Full text
  • Banfield M, Gardner K, McRae I, Gillespie J, Wells R & Yen, L. (2013) Unlocking information for coordination of care in Australia: A qualitative study of information continuity in four primary health care models. BMC Family Practice, 14:34. Full text
  • Desborough J, Banfield, M & Parker R. (2013) A tool to evaluate patients’ experience of nursing care in Australian general practice: Development of the Patient Enablement and Satisfaction Survey (PESS). Australian Journal of Primary Health, 20(2): 209-215. Full text
  • Gardner, K.L., Yen, L.E., Banfield, M.A., Gillespie, J.A., McRae, I.S. & Wells, R.W. (2013) From Coordinated Care Trials to Medicare Locals: what difference does changing the policy driver from efficiency to quality make for coordinating care? International Journal for Quality in Health Care, 25(1): 50-57. Full text

2012

  • Banfield, M.A., Gardner, K.L., Yen, L.E., McRae, I.S., Gillespie, J.A. & Wells, R.W. (2012) Coordination of care in Australian mental health policy. Australian Health Review 36(2):153-157. Full text

2011

  • Kiropoulos, L. A., Griffiths, K. M., & Blashki, G. (2011). Effects of a multilingual information website intervention on the levels of depression literacy and depression-related stigma in Greek-born and Italian-born immigrants living in Australia: a randomized controlled trial. J Med Internet Res, 13(2), e34. Abstract
  • Barney, L. J., Griffiths, K. M., & Banfield, M. A. (2011). Explicit and implicit information needs of people with depression: a qualitative investigation of problems reported on an online depression support forum. BMC Psychiatry, 11, 88. Abstract
  • Banfield, M. A., Griffiths, K. M., Christensen, H. M., & Barney, L. J. (2011). SCOPE for Research: mental health consumers' priorities for research compared with recent research in Australia. Aust N Z J Psychiatry, 45(12), 1078-1085. Abstract
  • Griffiths, K. M., Crisp, D. A., Barney, L., & Reid, R. (2011). Seeking help for depression from family and friends: a qualitative analysis of perceived advantages and disadvantages. BMC Psychiatry, 11, 196. Abstract

2009

  • Griffiths, K., Christensen, H., & Jorm, A. F. (2009). Mental health literacy as a function of remoteness of residence : an Australian national study. BMC Public Health, 9, 92. Abstract
  • Busby Grant, J., Mackinnon, A., Christensen, H., & Walker, J. (2009). Participants’ perceptions of motivation, randomisation and withdrawal in a randomised controlled trial of interventions for prevention of depression. Journal of Medical Ethics, 35, 768-773. Full text
  • Thanh, T., Hawking, D., Sankaranarayan, R., Griffiths, K., & Craswell, N. (2009). Quality-oriented search for depression portals. Paper presented at the 31st European Conference on Information Retrieval Conference. Full text
  • Griffiths, K., Calear, A. L., & Banfield, M. (2009). Systematic review on Internet support groups (ISGs) and depression (1): Do ISGs reduce depressive symptoms? Journal of Medical Internet Research, 11, e40. Full text
  • Griffiths, K., Calear, A. L., Banfield, M., & Tam, A. (2009). Systematic review on Internet support groups (ISGs) and depression (2): What is known about depression ISGs? Journal of Medical Internet Research, 11, e41. Full text

2008

  • Farrer, L., Leach, L. S., Griffiths, K., Christensen, H., & Jorm, A. F. (2008). Age differences in mental health literacy. BMC Public Health, 8, 125. Abstract

2006

  • Jorm, A. F., Christensen, H., & Griffiths, K. (2006). Changes in depression awareness and attitudes in Australia: the impact of beyondblue: the national depression initiative. Australian and New Zealand Journal of Psychiatry, 40, 42-46. Abstract
  • Christensen, H., & Griffiths, K. (2006). Getting help for depression by logging onto the Internet. The Australian Health Consumer, 3, 13-14. Full text (PDF, 462 KB)
  • Jorm, A. F., & Griffiths, K. (2006). Population promotion of informal self-help strategies for early intervention against depression and anxiety. Psychological Medicine, 36(1), 3-6. Abstract
  • Jorm, A. F., & Griffiths, K. (2006). Public and Medical Beliefs about mental disorders and their treatment. In P. Halligan & M. Aylward (Eds.), The Power of Belief. Oxford, UK: Oxford University Press.
  • Thanh, T., Craswell, N., Hawking, D., Griffiths, K., & Christensen, H. (2006). Quality and relevance of domain-specific search: a case study in mental health. Journal of Information Retrieval, 9(2), 207-225. Abstract
  • Jorm, A. F., Barney, L. J., Christensen, H., Highet, N. J., Kelly, C. M., & Kitchener, B. A. (2006). Research on mental health literacy: what we know and what we still need to know. Australian and New Zealand Journal of Psychiarty, 40, 3-5. Abstract
  • Jorm, A. F., Christensen, H., & Griffiths, K. (2006). The public's ability to recognize mental disorders and their beliefs about treatment: changes in Australia over 8 years. Australian and New Zealand Journal of Psychiatry, 40, 36-41 Abstract

2005

  • Griffiths, K., Thanh, T., Hawking, D., & Christensen, H. (2005). Automated assessment of the quality of depression websites. Journal of Medical Internet Research, 7(5), e59. Full text
  • Jorm, A. F., Christensen, H., & Griffiths, K. (2005). Belief in the harmfulness of antidepressants: results from a national survey of the Australian public. Journal of Affective Disorders, 88, 47-53. Abstract
  • Jorm, A. F., Blewitt, K., Griffiths, K., Kitchener, B. A., & Parslow, R. (2005). Mental Health First Aid responses of the public: results from an Australian national survey. BMC Psychiatry, 5(9). Abstract
  • Nakane, Y., Jorm, A. F., Yoshioka, K., Christensen, H., Nakane, H., & Griffiths, K. M. (2005). Public beliefs about causes and risk factors for mental disorders: a comparison of Japan and Australia. BMC Psychiatry, 5, 33. Abstract
  • Jorm, A. F., Christensen, H., & Griffiths, K. M. (2005). Public beliefs about causes and risk factors for mental disorders: changes in Australia over 8 years. Social Psychiatry and Psychiatric Epidemiology, 40(9), 764-767. Abstract
  • Jorm, A. F., Nakane, Y., Christensen, H., Yoshioka, K., Griffiths, K., & Wata, Y. (2005). Public beliefs about treatments and outcome of mental disorders: a comparison of Australia and Japan. BMC Medicine, 3, 12. Abstract
  • Jorm, A. F., Mackinnon, A. J., Christensen, H., & Griffiths, K. M. (2005). Structure of beliefs about the helpfulness of interventions for depression and schizophrenia: Results from a national survey of the Australian public. Social Psychiatry and Psychiatric Epidemiology, 40(11), 877-833. Abstract
  • Jorm, A. F., Christensen, H., & Griffiths, K. M. (2005). The  impact of beyondblue: the national depression initiative on the Australian public's recognition of depression and beliefs about treatments. Australian and New Zealand Journal of Psychiatry, 39, 235-254. Abstract
  • Griffiths, K. M., & Christensen, H. (2005). Website quality indicators for consumers. Journal of Medical Internet Research, 7(5), e55. Abstract

2004

  • Griffiths, K., & Christensen, H. (2004). Academic Consumer Researchers: A bridge between consumers and researchers. Australian and New Zealand Journal of Psychiatry, 38(4), 191-196. Abstract
  • Jorm, A. F., Griffiths, K. M., Christensen, H., Parslow, R. A., & Rodgers, B. (2004). Actions taken to cope with depression at different levels of severity: A community survey. Psychological Medicine, 34, 293-299. Abstract
  • Griffiths, K. M., & Jenkins, A. (2004). Advantages, disadvantages and priorities for action in consumer participation in mental health research: Results of the pre-workshop consultation. In K. M. Griffiths, H. Christensen, L. Barney, A. Jenkins, C. Kelly & K. Pullen (Eds.), Promoting consumer participation in mental health research: A national workshop. Canberra: Centre for Mental Health Research, Australian National University.
  • Griffiths, K. M., & Christensen, H. (2004). Commentary on "The relationship between public causal beliefs and social distance toward mentally ill people". Australian and New Zealand Journal of Psychiatry, 38(5), 355-357. Full text
  • Griffiths, K. M. (2004). Promoting consumer participation in mental health research in Australia: a national workshop. Australian Health Consumer, 3, 11-12. Full text (PDF 62KB)
  • Griffiths, K., Christensen, H., Barney, L., Jenkins, A., Kelly, C., & Pullen, K. (2004). Promoting consumer participation in mental health research: a national workshop. Canberra: Centre for Mental Health Research, The Australian National University.

2003

  • Christensen, H., Griffiths, K., & Groves, C. (2003). Online mental health information. In R. Wootton & P. Yellowlees (Eds.), Telepsychiatry and e-mental Health (pp. 199-216). London: Royal Society of Medicine Press Ltd.
  • Jorm, A. F., Griffiths, K. M., Christensen, H., Korten, A. E., Parslow, R. A., & Rodgers, B. (2003). Providing information about the effectiveness of treatment options to depressed people in the community: a randomized controlled trial of effects on mental health literacy, help-seeking and symptoms. Psychological Medicine, 33(6), 1071-1079. Abstract

2002

  • Griffiths, K. (2002). e-Mental health quality: global perspectives. In H. Christensen, K. Griffiths & K. Evans (Eds.), e-Mental Health in Australia: Implications for policy (pp. 46-51). Canberra: Commonwealth Department of Health and Ageing.
  • Griffiths, K., & Christensen, H. (2002). Pharmaceutical company web sites as sources of information for consumers: How appropriate and informative are they? Disease Management and Health Outcomes, 10(4).
  • Jorm, A. F., Griffiths, K., Christensen, H., & Medway, J. (2002). Research priorities in mental health. Canberra: Commonwealth Department of Health and Ageing.
  • Jorm, A. F., Griffiths, K. M., H., C., & Medway, J. (2002). Research priorities in mental health, part 1: An evaluation of the current research effort against the criteria of disease burden and health system costs. Australian and New Zealand Journal of Psychiatry, 36(3), 322-326. Abstract
  • Griffiths, K., Jorm, A. F., Christensen, H., & Medway, J. (2002). Research priorities in mental health, Part 2: an evaluation on the current research effort against stakeholders' priorities. Australian and New Zealand Journal of Psychiatry, 36(3), 327-329. Abstract
  • Griffiths, K. M., & Christensen, H. (2002). The quality and accessibility of Australian depression websites on the World Wide Web. Medical Journal of Australia, 176(10 Suppl), S97-104. Abstract

2001

  • Hawking, D., Craswell, N., P, B., & Griffiths, K. (2001). Measuring search engine quality. Information Retrieval, 4(1), 33-59. Abstract
  • Griffiths, K., & H, C. (2001). Quality of health information about depression on internet - Reply. British Medical Journal, 322(7298), 1367. Full text

2000

  • Jorm, A. F., Medway, J., Christensen, H., Korten, A. E., Jacomb, P. A., & Rodgers, B. (2000). Attitudes towards people with depression: effects on the public's help-seeking and outcome when experiencing common psychiatric symptoms. Australian and New Zealand Journal of Psychiatry, 34, 612-618. Abstract
  • Jorm, A. F., Christensen, H., Medway, J., Korten, A. E., Jacomb, P. A., & Rodgers, B. (2000). Public belief systems about the helpfulness of interventions for depression: associations with history of depression and professional help-seeking. Social Psychiatry and Psychiatric Epidemiology, 35(5), 211-219. Abstract
  • Jorm, A. F., Medway, J., Christensen, H., Korten, A. E., Jacomb, P. A., & Rodgers, B. (2000). Public beliefs about the helpfulness of interventions for depression: effects on actions taken when experiencing anxiety and depression symptoms. Australian and New Zealand Journal of Psychiatry, 34, 619-626. Abstract
  • Griffiths, K. M., & Christensen, H. (2000). Quality of web-based information on the treatment of depression: cross sectional survey. British Medical Journal, 321, 1511-1515. Abstract
  • Christensen, H., Griffiths, K. M., & Medway, J. (2000). Sites for depression on the web: a comparison of consumer, professional and commercial sites. Australian and New Zealand Journal of Public Health, 24(4), 396-400. Abstract

Updated:  23 September 2017/Responsible Officer:  Director, CMHR/Page Contact:  Web Admin, CMHR